INside the OUTcomes: A Rehabilitation Research Podcast

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, we will be talking about accessibility and public transportation around Chicago.

Our guests are Jacqueline Kish, PhD, OTR/L, a postdoctoral fellow in CROR's Rehabilitation Research and Training Center on Home and Community-Based Services at Shirley Ryan AbilityLab, and Kira O’Bradovich, a disability and community advocate who serves as Advocacy Committee Chair for the Chicago Chapter of the National Federation of the Blind of Illinois and a Data Dissemination Specialist for the U.S. Census Bureau. Kira’s current advocacy work focuses on improving the accessibility of public transit here in Chicago.

Find the transcript here.

This podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research. (Grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).  

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, we'll learn about some common mental health challenges that people face after spinal cord injury, and about a Center for Rehabilitation Outcomes Research project funded by the Craig H. Neilsen Foundation that seeks to better understand and support the mental health of people with spinal cord injury.

Our guests are Kaylee Dragna, a clinical psychologist at Shirley Ryan AbilityLab who works with patients who have a spinal cord injury, and with Jenny Burns, project manager on the Neilsen grant. 

Listen on ⁠Spotify⁠, ⁠Apple Podcasts⁠ or ⁠YouTube⁠.

Transcript available here.

This podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research. (Grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).  

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, we speak with HCBS recipient Kenny and the CEO of his provider agency, Heather LaTorra at Marrakech, about how they partnered to make the necessary changes to Kenny’s services to meet his goals and preferences.

Listen on Spotify, Apple Podcasts or YouTube.

This podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research. (Grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).  

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, our guests are Bridgette Schram, PhD, project manager on the Rehabilitation Research and Training Center on Home and Community-Based Services at Shirley Ryan AbilityLab, and Sara Karon, PhD, co-principal investigator on the project and a senior health policy analyst at RTI International. Sara, Bridgette, and their team are working on developing a set of person-centered HCBS outcome measures. Their work is funded by the National Institute on Disability, Independent Living and Rehabilitation Research.

A ⁠transcript ⁠of this episode is available.

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, we talk with David Chen, MD, the George M. Eisenberg, Chair of spinal cord injury rehabilitation at Shirley Ryan AbilityLab, about the Midwest Regional Spinal Cord Injury Care System, the National Spinal Cord Injury Model Systems Database and cutting-edge research into biomarkers that may predict functional recovery after spinal cord injury. A ⁠transcript ⁠of this episode is available.

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, we talk with Dawn Skaggs director of emergency, disaster and climate resilience at the World Institute on Disability. We'll learn about their global disaster response program, find out what can go wrong when people with disabilities aren't included in disaster planning, and hear about Dawn's 25 years of experience helping organizations, corporations and government agencies become more inclusive in their disaster planning and response.

Listen on Spotify or Apple Podcasts.  

INside the OUTcomes is supported by the National Institute on Disability, Independent Living, and Rehabilitation Research (grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).

A ⁠transcript ⁠of this episode is available.

Mark Harniss, PhD, Associate Professor of Rehabilitation Medicine and Director of the UW Disability Studies Program at the University of Washington, Seattle, and Heather Evans, PhD, Acting Assistant Professor of Rehabilitation Medicine at the University of Washington, Seattle and Director of Research for the Northwest ADA Center, are developing an interactive decision guide designed to help people think through requesting a reasonable accommodation at work. Their work is funded by the National Institute on Disability, Independent Living and Rehabilitation Research through the Center for Rehabilitation Outcomes Research at Shirley Ryan AbilityLab.

A transcript of this episode is available.

Read the episode transcript.

This podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research. (Grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).  

How did the Rehabilitation Institute of Chicago become Shirley Ryan AbilityLab -- the first-ever translational research rehabilitation hospital where clinicians and researchers work together in the same space to drive innovation? On this episode we'll find out in our discussion with Rick Lieber, PhD, Chief Scientific Officer & Senior Vice President of Research and Miriam Rafferty, PT, DPT, PhD, Director of Implementation Science, both at Shirley Ryan AbilityLab.

For more about this episode, and to read the transcript, click here.

INside the OUTcomes is supported by the National Institute on Disability, Independent Living, and Rehabilitation Research (grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).

What are home and community-based services and how do they -- or don't they -- meet the needs of recipients? On this episode of INside the OUTcomes: A Rehabilitation Research Podcast, we hear from Teresa Nguyen, Director of the Community Living Equity Center in the Lurie Institute for Disability Policy and Natalie Chong, a doctoral student at the Heller School for Social Policy and Management at Brandeis University about unmet needs in HCBS and why data is so important in helping to ensure these needs are met.

For more about this episode, and to read the transcript, click here.

Listen on Spotify, Apple Podcasts, Google Podcasts or iHeartRadio. 
INside the OUTcomes is supported by the National Institute on Disability, Independent Living, and Rehabilitation Research (grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).

On this episode of INside the OUTcomes: A Rehabilitation Research Podcast we discuss a phone-based intervention for self-managing pain at work that is part of a clinical trial through the Center for Rehabilitation Outcomes at Shirley Ryan AbilityLab.
Our guests are the project’s lead investigator, Dawn Ehde, PhD, a psychologist and Professor of Rehabilitation Medicine in the Division of Clinical and Neuropsychology at the University of Washington, Seattle; Mary Curran, a Licensed Independent Clinical Social Worker in the University of Washington School of Social Work who delivers the pain self-management intervention, and Rachel, 38, a nurse in an intensive care unit who says her participation in the pain self-management program has provided valuable tools and techniques she uses to manage pain caused by multiple sclerosis.

For more about this episode, and to read the transcript, click here. Listen on Spotify, Apple Podcasts, Google Podcasts. 
 
INside the OUTcomes is supported by the National Institute on Disability, Independent Living, and Rehabilitation Research (grants 90DPKT0007, 90RTGE0004, 90RTEM0001, 90SIMS0015).

The Rehabilitation Measures Database (RMD) is a free, online resource managed by the Center for Rehabilitation Outcomes Research at Shirley Ryan AbilityLab. With more than 500 measures supported by some of the world's best doctors, therapists, researchers, and educators, the RMD is the go-to resource for measuring benchmarks and outcomes in physical medicine and rehabilitation. The database is visited more than 5 million times annually, and contains a range of instruments on stroke, spinal injuries, brain injuries, Parkinson’s disease, neuromuscular conditions, vestibular disorders, musculoskeletal conditions, cancers, arthritis or use our search feature to find what you’re looking for.  

On this episode, we will talk with Linda Ehrlich-Jones, RN, PhD, Associate Director, Center for Rehabilitation Outcomes Research and Research Associate Professor, Department of Physical Medicine & Rehabilitation, Northwestern University, Feinberg School of Medicine and Namrata Grampurohit, PhD, OTR/L, Associate Professor in the Department of Occupational Therapy at Thomas Jefferson University in Philadelphia, and a member of the Jefferson Center for Outcomes Measurement. Linda manages the RMD with help from collaborators across the country, including Dr. Grampurohit. Together, we will talk about how the database came to be, the measures it contains, how measures are reviewed and other resources offered by the RMD.

Join the Rehabilitation Measures Database Networking Group on LinkedIn and keep up with the #MeasureOfTheWeek posted each Thursday.

For more about this episode, and to read the transcript, click here.

 
We talk with Miriam Rafferty, PT, DPT, PhD, a scientist in the Center for Rehabilitation Outcomes Research and Assistant Professor of Physical Medicine & Rehabilitation at Northwestern University's Feinberg School of Medicine about Parkinson's Works, the support group she created for people with Parkinson's disease who want to talk about employment. We also hear from Lynn, a long-time participant in the support group, who discusses her struggles with managing symptoms at work while coping with an ever-increasing workload as a senior project manager. She talks about interacting with colleagues who (mostly) don't know her diagnosis and at the end of the podcast, Lynn wonders about her future at work as she goes on short-term disability.

If you are interested in learning more about Parkinson's Works, contact Paulo Aco at paco⁠@sralab.org or (312) 238-7275⁠. Parkinson’s Works meetings are held on a bi-weekly basis from 4:40-5:40pm CST and are moderated by a vocational rehabilitation counselor.

Parkinson's Works is supported by NIDILRR and by a Community Grant from the Parkinson's Foundation.

For more about this episode, and to read the transcript, click here.

Let's get oriented. In our first episode, we'll talk with Allen Heinemann, PhD, Director of the Center for Rehabilitation Outcomes Research (CROR) about the different research projects currently underway at CROR, how CROR fits into the translational research model at Shirley Ryan AbilityLab, the Rehabilitation Measures Database and what you can expect to hear about in upcoming episodes. For more about this episode, and to read the transcript, click here.